About us

The Tanzania Sickle Cell Disease Alliance was founded in response to the growing need for a coordinated, multi-sectoral approach to tackle the rising burden of Sickle Cell Disease in the country. For many years, individuals and organizations worked independently on SCD-related efforts — from awareness campaigns to clinical care and research. Recognizing the power of unity, TSDA was established to bring all stakeholders together under one coordinated national platform. Since its inception, TSDA has worked to bridge gaps between communities, healthcare systems, and policymakers, championing SCD prevention, care, and
advocacy. The Alliance continues to grow as a trusted voice and national partner in shaping the SCD agenda in Tanzania and the region.

• Reached thousands of Tanzanians through public awareness and education
  campaigns on SCD and its prevention.
•  Strengthened collaboration with the Ministry of Health (MoH) and key
  health institutions to improve SCD policy and program coordination.
• Supported screening and counseling initiatives targeting communities, schools, and couples.
• Facilitated capacity building for healthcare providers to enhance diagnosis, management, and prevention services.
• Engaged in research and data sharing to promote evidence-based decision-making and advocacy.

Through these efforts, TSDA is helping to transform SCD from a neglected condition
into a National health priority.

• • Promote Prevention: Enhance national capacity for SCD prevention
    through premarital and newborn screening, genetic counseling, and
    community education.
  •  Increase Awareness: Promote public understanding of Sickle Cell Disease
    and its prevention through education, media campaigns, and outreach.
  •  Strengthen Care Systems: Support the development of standardized,
    accessible, and quality healthcare services for SCD diagnosis, treatment, and
    long-term management.
  •  Advocate for Policy Support: Influence national policies and programs that
    prioritize SCD prevention, screening, and treatment.
  •  Promote Research and Data Use: Facilitate and disseminate research on
    SCD prevention, genetics, and care to inform evidence-based interventions.
  •  Empower Communities: Build the capacity of patients, caregivers, and
    support groups to advocate for their rights, promote prevention, and improve
    quality of life.

• Public Awareness and Prevention Campaigns through mainstream media,
  and digital platforms.
•  Partnerships with the Ministry of Health (MoH), healthcare facilities, and local
  organizations.
•  Capacity Building for healthcare providers and community health workers on
  SCD prevention and management.
•  Policy Advocacy to strengthen national SCD programs, prevention
  strategies, and resource allocation.
•  Community Outreach and Screening for early detection of both Trait and
  disease, counselling, and preventive education.

TSDA works closely with the Ministry of Health (MoH), Office of the President – Regional Administrations and Local Government (PO – RALG), Ministry of Education (MoE), healthcare institutions, research centres, universities, Faith Based Organizations (FBOs) and international partners to achieve national and regional SCD prevention and care goals.